CHSWG Minutes

Children’s Hearing Services Working Group

(CHSWG)

Date: 9th June 2020
Time: 1.30pm
Venue: Zoom conference call
Minutes by: Don McLeod
Attendees Jane Thomas (Chair – Sign Hi Say Hi!), Tracy Stott, (Sensory Needs) Jacqueline Wilson (Teacher of the Deaf), Angela Crawforth (TOD), Helen McCann (TOD), Helen Connolly(Lancashire) Sally McGlynn Paediatric Audiology, Hazel Badje (Senior Engagement Advisor – NDCS, Don McLeod (Sign Hi Say Hi).

AGENDA

  1. Apologies
  2. Matters Arising from the minutes of the 4th February 2020/Action Points
  3. Updates from representatives
  4. AOB
  1. Apologies

Collette Gocher

  1. Matters Arising from the minutes of the 4th February 2020/Action Points

 

 

 

Outstanding Action Points

Date Arising Issue Action Owner Target Date Current Status
07/10/18 Angela Crawforth to update CHSWG on the outcome of the Radio Aid review.

Update 9th June 2020

All documentation reviewed and awaiting sign off from management.

Hazel offered to provide national examples if required.

Sally stated that Phonak m aids are not compatible with Radio Aids, Angela has factored this in.

Jane Thomas hoped this action would be cleared by next CHSWG

Update 04/02/20

JW advised policy being revised & developed with associated criteria where every child should have option to trial RA then if they get one to take it home. This would include children at Nursery. The intention is to ask parents to put RA on their house contents insurance but as some parents do not have insurance this would not prevent them taking home a RA. Currently looking at 11 children who fit the criteria and those up and coming. But if don’t fit criteria but think child would benefit, they can still access scheme.

HB advised that other Local Authorities have developed cost effective corporate insurance so parents do not need to be asked to put a RA on their insurance. There is an example of NDCS website.

HB asked JW re the planned criteria included RAs for pre-school children not in an EY setting. 80% of Local Authorities include this group within their criteria. NDCS issued an FOI on 8/01/20 about RAs and it would be positive if Blackpool

could advise that this group were included

Update 08/10/19 – AC stated this was ongoing as part of a wider equipment review being led by Phil Thomson. HB recommended this issue needs to be resolved by 31st March as it is part of a national NDCS campaign and NDCS will be highlighting non conformity.

Update 07/02/19 – The criteria for award of a radio aid is under review Jacqueline Wilson is going to review all FM systems some radio aids are not compatible with all hearing aids. Currently they have enough spares to replace any that stop working. Blackpool are still looking at the option of being able to take them home. Helen McCann stated that Lancashire children are able to take them home. They have to sign they will take care of them and replace them if they lose or break them. Blackpool do not believe it is legal to charge parents.

AC Ongoing

           

  1. Updates From Representatives
Children’s Services
Key Points
Actions Arising None
 

 Sensory Services

Key Points Helen McCann stated that there were a number of early year children and that monthly stay and play sessions had been arranged. Family sign will restart after lockdown.

Angela stated newsletters had been sent to parents and teachers, Helen Connolly confirmed that Lancashire have also done this. On line training has taken place for teachers and support assistants. On line tools have been useful in supporting children and parents and staff have been flexible in their approach.

Actions Arising None
 

Paediatric Audiology

Key Points Sally McGlynn confirmed that ear mould appointments will restart after lockdown. Sally to meet with Lesley Brown to discuss process for appointments for children with glue ear. Changes in management taking place, ENT hand over taken place in Preston, unsure of changes in Blackpool.
Actions Arising: None
 

Sign Hi Say Hi

Key Points Jane Thomas stated families had been contacted during lockdown and a number of families had felt anxious.

One child had been accessing school work with help from their communication support worker and this was working well. Zoom quiz and craft competitions had been held in order to keep in touch with families.

Hazel said other DCS groups had held quizzes etc and included TODS. Some areas had assigned older deaf children as a buddy.

Actions Arising: None
 

NDCS

Key Points Hazel stated that NDCS were looking at the implications of wearing face masks, the masks with Perspex become cloudy. There was also an issue regarding the increase use of plastic on the environment.

NDCS were concerned around radio aid microphones being shared and how they would be cleaned, there are a number of practical issues around radio aids.

Hazel said that there were pros and cons with on line working, parents confidence had increased and there was an ongoing demand from parents. Those engaged in the process was working okay but children who do not have support will be difficult.

Hazel asked if there had been any consideration for catchup during summer holidays, Angel stated that there had been no discussion around summer schools. Schools had been open during Easter and half term and there was a push to get Blackpool schools back.

NDCS were concerned about emotional and social development of young people and there was a Parliamentary Select Enquiry looking at the impact of deaf children and families.

Actions Arising None
Any Other Business
Key Points Jane mentioned that she had attended 2 family hospital appointments and the hospital were not keen to have interpreter and parent attend due to Covid risk and there was the added difficulty with face masks. Sally confirmed that they were reviewing video calls and patients would only attend clinic for testing. Sally suggested interpreters to be included in video calls. It was agreed virtual interpreters would be helpful.

Don stated that some families had raised concern over access to batteries during lockdown. Sally stated that batteries had always been available and the problem may have been around opening hours in St Annes, Fulwood will post batteries direct to families

Sally said Dr Ahmed had asked if schools were now able to carry out APD initial assessments. Angela stated this was not happening yet as there had been IT problems with the toolkit but will share with Dr Ahmed when up and running.

Actions Arising Jane to email Sally details of Sign Health who are offering a free interpreter service.

.

Date of Next Meeting

 Tuesday 6th October 2020 –10 am Venue TBC

—————————————————————————————————————————————–

Children’s Hearing Services Working Group

(CHSWG)

Date: 9th June 2020
Time: 1.30pm
Venue: Zoom conference call
Minutes by: Don McLeod
Attendees Jane Thomas (Chair – Sign Hi Say Hi!), Tracy Stott, (Sensory Needs) Jacqueline Wilson (Teacher of the Deaf), Sally McGlynn Paediatric Audiology, Hazel Badje (Senior Engagement Advisor – NDCS), Collette Clarkson (Newborn Hearing Screening Coordinator & Adult Services Audiology), Jane Russell (Parent)

AGENDA

  1. Apologies
  2. Matters Arising from the minutes of the 4th February 2020/Action Points
  3. Updates from representatives
  4. AOB
  1. Apologies

Collette Goacher

  1. Matters Arising from the minutes of the 4th February 2020/Action Points

 

 

 

Outstanding Action Points

Date Arising Issue Action Owner Target Date Current Status
Update 04/02/20

08/10/19

JW advised policy being revised & developed with associated criteria where every child should have option to trial RA then if they get one to take it home. This would include children at Nursery. The intention is to ask parents to put RA on their house contents insurance but as some parents do not have insurance this would not prevent them taking home a RA. Currently looking at 11 children who fit the criteria and those up and coming. But if don’t fit criteria but think child would benefit, they can still access scheme.

HB advised that other Local Authorities have developed cost effective corporate insurance  so parents do not need to be asked to put a RA on their insurance. There is an example of NDCS website.

HB asked JW re the planned criteria included RAs for pre-school children not in an EY setting. 80% of Local Authorities include this group within their criteria. NDCS issued an FOI on 8/01/20 about RAs and it would be positive if Blackpool could advise that this group were included.

Angela Crawforth to update CHSWG on the outcome of the Radio Aid review

Update – The criteria for award of a radio aid is under review Jacqueline Wilson is going to review all FM systems some radio aids are not compatible with all hearing aids. Currently they have enough spares to replace any that stop working. Blackpool are still looking at the option of being able to take them home. Helen McCann stated that Lancashire children are able to take them home. They have to sign they will take care of them and replace them if they lose or break them. Blackpool do not believe it is legal to charge parents.

AC stated this was ongoing as part of a wider equipment review being led by Phil Thomson. HB recommended this issue needs to be resolved by 31st March as it is part of a national NDCS campaign and NDCS will be highlighting non conformity.

Update 9th June 2020

All documentation reviewed and awaiting sign off from management.

Hazel offered to provide national examples if required.

Sally stated that Phonak m aids are not compatible with Radio Aids, Angela has factored this in.

Jane Thomas hoped this action would be cleared by next CHSWG

AC Ongoing

           

  1. Updates From Representatives
Children’s Services
Key Points None
Actions Arising None
 

Sensory Services

Key Points
Actions Arising
 

Paediatric Audiology

A new full time Band 3 is now working alongside current staff but a Band 5 is leaving. More staff are still required but funding is an issue and recruitment has been a challenge in the past. In order to work to the level of available resources, Paediatric Audiology i(PA) is looking at producing fewer reports and to go paperless. Dr Mukherjee is on leave for 2 months.

Audiology is considering other actions to improve effectiveness including a mutually agreed discharge for those YP (aged 14-16) who have decided not to wear HAs over a period of time – usually children with a mild hearing loss, occasionally those with a greater loss. PA advise they can come back if they wish. Once discharged they are taken off the Blackpool ToD case load.

There is now a process where if further information or more copies are required from Audiology, then under GDPR, a formal request has to be made by either parents or professionals to a specific hospital email. The department responsible for granting such requests has to date been very responsive.

None
 

Sign Hi Say Hi

Actions Arising: JT to ask HC about extending the invitation to F & W families either at that session or another.
 

NDCS

None
None
Any Other Business
Key Points SMcG was asked to pass on the CHSWG’s thanks to Dr Ahmed for his useful and informative presentation at 8/10/19. JW advised that at least 8 schools had subsequently bought headphones however ToDs were yet to see an impact on students’ learning.
Actions Arising
Key Points Delays in glue ear pathway

There was a discussion around the glue ear pathway and the problems for parents who experience  delays and the impact of these delays on children. There is currently a potential for some children to have 2 years at school with a suspected hearing loss. It was felt that communication can be improved between services such as GPs ENT and Paediatric Audiology to deliver enhanced outcomes of a faster service and parents being better informed.

Actions Arising SMcG volunteered to initiate action and start discussions. The topic is to be progressed through the CHSWG as an agenda item.
Key Points Young people with mild loss who choose not to wear hearing aids

Part of the proposed reduction by PA was for the group of YP who decide after a number of appointments that they do not wish to wear hearing aids. While many are aged 14-17, some are only 11. High school seems to be a factor.  It was agreed that it was currently no-one’s role to ask YP and parents how they feel about wearing hearing aids.  JW has conversations around Healthy Minds but YP with a mild loss reject the word ‘deaf’. The lack of relationship was evident since ToDs and Audiology only see these YP once a year.

HB asked are there other factors associated with these families which contribute to the barriers. SMcG reported YP often have social emotional well-being problems. Parents report that in this circumstances, hearing aids are another pressure.

HB/JR both suggested the need to look at systemic change and breaking down barriers in this cohort. It was agreed that social emotional well-being for this group is not addressed. It is not one organisation’s responsibility. SMcG noted Lancashire and Blackpool have differing policies re unilateral loss. PA may discharge these YP but hope that Blackpool ToDs will still see them.

SMcG said transitions meetings with Adult Audiology are working well and these YP often ask for hearing aids again as young adults.

It is similar to very young children not wearing hearing aids in the first year. – see item below. NDCS is working on this area. It is a challenge which is not easily resolved in this current framework. HB suggested work should be around a Deaf gain model without using ‘deaf’ for this group.

Actions Arising Keep item on the CHSWG agenda.

Agree criteria at next CHSWG then SMcG can run the numbers of YP in this cohort for B & F & W

The CRIDE may have numbers of mild, moderate if on ToD case load

SHSH to consider alternative ways to include this group

JR to look at latest research

All to bring ideas for next meeting

Key Points Supporting parents to encourage young babies to wear hearing aids

It was agreed that it is good practice to support hearing aid use from the earliest time, including those children with mild/moderate hearing loss. SMcG said Play and Stay children traditionally wear hearing aids which  includes those children with lower levels of hearing loss. There is no Blackpool run Play and Stay at the moment but  SMcG said there is a critical mass of babies and younger children so a Play and Stay may work. Babies could also get ear moulds done so saving parents time but this service could only be offered at Play & Stay rather than the clinic if parents attended Play & Stay and used the ear mould service.

JR said there could be  options for  funding for taxi for those  families without transport. Previous Play & Stay was funded by SHSH & worked well and eventually was held at parents houses – parents decided what they wanted. SMCG said could say ear moulds are available. JR suggested a leaflet could offer families ear moulds, cake and support. SMcG knows F & W families who come to Whitegate Drive. Together Centre worked well as it had toys and resources.

 

Actions Arising JW to ask Helen McC if she would set up Play & Stay

Action – CHSWG to identify a few factors e.g. numbers getting new ear moulds,  increased HA use and one more (possibly evidence of families staying in contact) and for the CHSWG to monitor, evaluate and report on it together evidence.

Action – SMcG to identify the number of 0-3 children known to Paediatric Audiology

Action – Helen Connolly to consider the above in a joint approach as Lancashire equivalent is needed or to support a Blackpool, Fylde & Wyre Play & Stay.

 

Key Points CHSWG Terms of Reference have been sent out. JT unsure re idle members. CI coordinator (could be copied into minutes), Speech and language – no news.  NW Specialist SLT contact?
Actions Arising Action – JW to ask CG to feedback re progress update on Specialist SLT

.

Date of Next Meeting

 Tuesday 9th June 2020 – 1.30 pm Bickerstaff House

———————————————————————————————————————–

Children’s Hearing Services Working Group

(CHSWG)

Date: 8th October 2019
Time: 1.30pm
Venue: Bickerstaff House, Blackpool
Minutes by: Don McLeod
Attendees Jane Thomas (Chair – Sign Hi Say Hi!), Doctor Ahmmed,  Angela Crawforth (Inclusion Coordinator), Don McLeod (Secretary),  Tracy Stott, (Sensory Needs) Jacqueline Wilson (Teacher of the Deaf), Helen McCann(Teacher of the Deaf), Helen Connolly(Lancashire),Sally McGlynn (Audiology), Hazel Badje(Senior Engagement Advisor – NDCS)

AGENDA

  1. Introductions
  2. Apologies
  3. Matters Arising from the minutes of the 11th June 2019/Action Points
  4. Auditory Processing Disorder(OPD) – Doctor Ahmmed
  5. Updates from representatives
  6. AOB
  1. Introductions

J Thomas welcomed everyone to the meeting and everyone introduced themselves.

  1. Apologies

Jane Russell

  1. Matters Arising from the minutes of the 11th June 2019/Action Points

 

 

 

Outstanding Action Points

Date Arising Issue Action Owner Target Date Current Status
08/10/18 – AP! J Thomas agreed to write to H Connolly the Lancashire Education representative.

Update – Jaqueline Wilson will be meeting with Helen Connolly over the summer with the aim of building a relationship between Blackpool and Lancashire and sharing ideas.

Closed Helen is now attending the CHSWG meetings

JT Closed
08/10/18 Angela Crawforth to update CHSWG on the outcome of the Radio Aid review

Update – The criteria for award of a radio aid is under review Jacqueline Wilson is going to review all FM systems some radio aids are not compatible with all hearing aids. Currently they have enough spares to replace any that stop working. Blackpool are still looking at the option of being able to take them home. Helen McCann stated that Lancashire children are able to take them home. They have to sign they will take care of them and replace them if they lose or break them. Blackpool do not believe it is legal to charge parents.

Update 2019-10-08. AC stated this was ongoing as part of a wider equipment review being led by Phil Thomson. HB recommended this issue needs to be resolved by 31st March as it is part of a national NDCS campaign and NDCS will be highlighting non conformity.

AC Ongoing
  1. Auditory Processing Disorder – Presentation By Doctor Ahmmed

 

Dr Ahmmed delivered a presentation on assessing Auditory Processing Disorder (APD). The presentation was well received by members who thanked Dr Ahmmed for an informative presentation. The presentation slides have been sent out with the minutes.

  1. Updates From Representatives
Children’s Services
Key Points None
Actions Arising None
 

Sensory Services

Key Points JW said that PHSE Days had been held, however scheduling needs reviewing for older children. Held post exams so not to disrupt, but didn’t attend as they had already left school.

AC stated the plan was for schools to become more involved in assessments of hearing impaired children with TODS supporting them. A toolkit will be provided to schools by half term. The TODS will support the schools during the implementation. A parent Forum event is being held at the zoo.SM said that they need to consider some of these events outside working hours as many parents work.

DM raised the issue that there were concerns that support for children would be reduced. AC stated that children that need support will receive it, but the aim is to promote independence. Children with greater needs will have specialist support, this will be covered in more detail at the Sign Hi / Sensory Services meeting.

Actions Arising None
 

Audiology

SM stated they had lost a band 3 audiology assistant and senior member of staff was off sick. They have a new band 2 starting and part time physician. There will be a short period of no clinics whilst the database is updated. Transition from child to adult audiology are looking at following the NDCS model and empowering the child/young adult.

DM stated that feedback from families show whilst they are happy with the service they receive from audiology during appointments, they are concerned that the follow up appointments are delayed and not scheduled for the correct review period and that they have to chase audiology to obtain review appointments sometimes on several occasions.

None
 

Sign Hi Say Hi

None
None
 

NDCS

None
None
Any Other Business
Key Points JT said that SHSH families had some concerns regarding the service provided by TODs. It was agreed that this would be taken forward as a separate meeting with NDCS attending as well as SHSH.

JT to pass Becky Booths details to TODS to enable deaf children to attend youth forums.

Actions Arising None

.

Dates of Next Meetings

 

Tuesday 4th February 2020 – 11.00am Bickerstaff House

Tuesday 9th June 2020 – 1.30 pm Bickerstaff House

 ———————————————————————————————————————–=

Children’s Hearing Services Working Group

(CHSWG)

Date: 11th June 2019
  fx 11.00am
Venue: Bickerstaff House, Blackpool
Minutes by: Karen McLeod
Attendees Don McLeod (Chair – Sign Hi Say Hi!), Lesley Brown (Childrens Services, K McLeod (Secretary),  Tracy Stott, (Sensory Needs) Jacqueline Wilson (Teacher of the Deaf), Helen McCann(Teacher of the Deaf)  Angela Crawforth (Inclusion Coordinator) , Collette Gollcher(Senior SEN Manager) , Hazel Badje(Senior Engagement Advisor – NDCS), Megan Marr (NDCS)
Apologies Jane Thomas, Jane Russell, Helen Connolly

AGENDA

  1. Introductions
  2. Apologies
  3. Matters Arising from the minutes of the 7th February 2019
  4. Updates from representatives
  5. AOB

 

  1. Introductions

D McLeod welcomed everyone to the meeting and everyone introduced themselves.

 

Outstanding Action Points

Date Arising Issue Action Owner Target Date Current Status
08/10/18 – AP! J Thomas agreed to write to H Connolly the Lancashire Education representative.

Update – Jaqueline Wilson will be meeting with Helen Connolly over the summer with the aim of building a relationship between Blackpool and Lancashire and sharing ideas.

JT Ongoing
08/10/18 – AP2 J Thomas to invite Lise Henderson and Sheena Round JT Closed
08/10/18 – AP 3 C Salisbury to invite local SLT staff to the Sheena Round presentation

Update – presentation held

CS Closed
08/10/18 Angela Crawforth to update CHSWG on the outcome of the Radio Aid review

Update – The criteria for award of a radio aid is under review Jacqueline Wilson is going to review all FM systems some radio aids are not compatible with all hearing aids. Currently they have enough spares to replace any that stop working. Blackpool are still looking at the option of being able to take them home. Helen McCann stated that Lancashire children are able to take them home. They have to sign they will take care of them and replace them if they lose or break them. Blackpool do not believe it is legal to charge parents.

AC Ongoing
Children’s Services
Key Points Lesley Brown stated the person they had 1 day a week to cover sickness and leave has now left. She mentioned that Sally McGlynn(Audiology Fulwood) has said that audiology funding is changing from being paid as a service to receiving funding per patient. This will mean changes, but is thought the eventual outcome will be beneficial.

Care Quality Commission(CQC) have looked at Children’s Services carrying out interviews and they have had positive feedback so are expecting a favourable report.

Actions Arising None
 

Sensory Services

Key Points Jacqueline Wilson is holding PHSE days on the 28th June, 1st and 2nd July. Has found it easier to plan to hold them together not sure of final number yet.

Helen McCann said she has had a large increase in numbers with 8 referrals since January. There have been 4 from Newborn Screening and 4 via Audiology. Tracy Stott is doing family sign with 3 families and meeting with varying degrees of success. She is keen to get early communication with the child, but families don’t always see the need at this stage. Helen is keen that the child’s development isn’t delayed by starting too late. 3 of the children have bone conduction aids. Helen is also going to support Jacqueline with running the PHSE days. 3 of her caseload will be going into school this year. Don asked about resources and Angela said there might be a need to rebalance caseload, but if number increase they still can call on Jo Booth and Collette also said that she is a Teacher of the Deaf.

Karen McLeod asked whether now numbers had increased whether Helen was intending to start running early years events. Helen had arranged an event per term which previously Sign Hi Say Hi had funded. Helen said yes she was looking at doing that and was also looking for a suitable venue to hold regular stay and play and hopes to have something up and running in September. Helen is also looking at encouraging families where they have a pre-school child(not necessarily their hearing impaired child) to come along and share their experiences.

Helen McCann supports one child whose only form of communication is BSL and has been in touch with NDCS to see if they can find a similar child(ren) for her to communicate with by BSL on Skype or Facetime. NDCS are progressing this. The child has friends in school who do some signing, but has expressed a wish to have a signing friend. Hazel Badje asked Megan to link with Gemma and Emma as this links to engagement and this type of communication might be a model NDCS might want to promote

Tracy Stott said the 3 families she is involved with are varying in their progress some are very keen and others need more encouragement. She also deals with college age and her support there is to help them complete forms particularly PIP claims form as it is very different from DLA. As the forms are not deaf specific the questions can often seem intrusive and irrelevant. Also it is a rather negative experience as they need to focus on the things they can’t do.

Actions Arising None
 

Sign Hi Say Hi

Karen McLeod mentioned that there is another child that she will be referring for specialist speech and language. She said she was still concerned that there was no referral pathway into the service and it was to some extent an element of luck.  There was a general discussion regarding SALT and the presentation given by Sheena Round at the last CHSWG. Collette Gollcher was supportive of progressing a similar model which would require a population footprint of 2-2.5 million.(which would involve agreement with Lancashire as well as Blackpool CCG) and undertook to take this forward with the Health SEND group as it looks like it fits the emerging integrated care system model. Hazel Badje is going to forward some commissioning guidance documents to support Collette in her conversation to progress this. Hazel also said Sheena Round would be happy to support and shadow another health group going forward.

Don Mcleod stated that Sign Hi Say Hi had been successful in their bid for funding for the Peoples Health Trust and had secured a 2 year grant. As a result of this Sign Hi are now looking at holding another residential event at Bendrigg Lodge next summer as this had been the most popular and successful event we have ever held.

None
 

NDCS

Hazel Badje apologised for the fact she might have been reticent to take on any issues at the previous CHSWG, but there has been a big reorganisation within NDCS and she wasn’t sure it she would still have a job. She now has a much wider remit as herself and 2 other staff cover England, but NDCS will still endeavour to have some representative at CHSWG. Helen went on to introduce Megan who has just started with NDCS.

NDCS will be launching a campaign in September aimed at post 14 and transition into adult to try and increase deaf children’s chances of success by opening up opportunities.

Any Other Business
Key Points Karen McLeod asked who represented the interests of deaf children at the SEND Board. Collette stated that she sits on both the Ops and SEND board and represents the sensory side interests.

Blackpool have not yet had their Child Services inspection. Hazel said that NDCS have been involved in providing inspectors with some insight into deafness. Prior to any inspections NDCS complete a proforma to give their view on interagency working and any positives and negatives. NDCS would include their view on the provision of SALT on any report into Blackpool so Hazel encouraged Collette to try and progress this area. Also Hazel said NDCS were concerned about the availability of radio aids to pre-school children in the home.  Hazel said she is involved at looking how different local authorities have addressed this and is happy to share other council’s policies as to how they have overcome barriers in provision.

Angela Crawforth is launching a toolkit for class teachers which will define what they should be doing and it is also going to be placed on the local offer website so parents know what the services should be delivering. A person has just been appointed and the aim is to get it out to schools in September

Phil Thompson has returned to work this week on a phased return after sick leave.

Actions Arising None

.

Dates of Next Meetings

 

Tuesday 8th October 2019 – 1.30 pm Bickerstaff House

Tuesday 4th February 2020 – 11.00am Bickerstaff House

Tuesday 9th June 2020 – 1.30 pm Bickerstaff House

 

 

 

 ===========================================================================

Hearing Services Working Group
(CHSWG)
Date: 7th February 2019Time: 1.30pm
Venue: Bickerstaff House, Blackpool
Minutes by: Don McLeod

Attendees Jane Thomas (Chair – Sign Hi Say Hi!), Cathy Salisbury, Lesley Brown, Rachel Martin, D McLeod (Secretary), Sam Warburton, Sally McGlynn, Tracy Stott, Jacqueline Wilson, Vicky Gray, Louise O’Toole, Sheena Round, Angela Crawforth, Hazel Badje, Helen Connolly
Apologies Wendy Geddis, Jane Russell

AGENDA

1. Introductions
2. Apologies
3. Matters Arising from the minutes of the 7th October 2018
4. Presentation by Sheena Round
5. AOB

1. Introductions
J Thomas welcomed everyone to the meeting and introduced Sheena Round and her team.

Outstanding Action Points
Date Arising Issue Action Owner Target Date Current Status
08/10/18 – AP! J Thomas agreed to write to H Connolly the Lan-cashire Education representative.
JT Ongoing
08/10/18 – AP2 J Thomas to invite Lise Henderson and Sheena Round
JT Closed
08/10/18 – AP 3 C Salisbury to invite local SLT staff to the Sheena Round presentation

Update – presentation held today CS Closed
08/10/18 Angela Crawforth to update CHSWG on the out-come of the Radio Aid review AC Ongoing

Specialist Speech & Language Therapy

Key Points C Salisbury said that that 2 sessions had been held with Lise Henderson.5 families at-tended the first session and 4 the following session.
Jacqueline Wilson asked if Cathy could provide her with feedback regarding the ses-sions and Cathy agreed to do this.

Sheena Round Consultant SLT/Network Manager (Cheshire & Merseyside SLT Hearing Impairment Network) gave a presentation regarding the delivery of specialist SLT in Cheshire and Merseyside. Attendees felt that this was the model that Blackpool Fylde and Wyre should be aiming to achieve. It was agreed that in order to progress this that other CCGs including Blackburn & Darwen and Lancashire would need to be involved in order to meet the numbers. Hazel Badje, Cathy Salisbury and Sign HI agreed to pro-gress this.

The presentation slides are attached.

Actions Arising

Any Other Business
Key Points Audiology stated that a new smaller hearing aid would be available however, this is not compatible with FM systems. Extra clinics were being provided to reduce waiting lists with more clinics being held at Whitegate Drive. Positive feedback was received from the Patient Satisfactory Survey.
Actions Arising None
.

Date of Next Meeting – 11th June 2019 – 11.00am at Bickerstaff House.

————————————————————————

Childrens Hearing Services Working Group
(CHSWG)
Date: 8th October 2018
Time: 1.30pm
Venue: Bickerstaff House, Blackpool
Minutes by: Don McLeod

Attendees J Thomas (Chair – Sign Hi Say Hi!), C Clarkson (New Born Screening Coordinator), D McLeod (SHSH), J Russell (SHSH), H Badje (NDCS), M Simey (Fulwood Audiology), A Crawforth (Blackpoool SEND), J Wilson (Blackpool SEND), T Stott (Black-pool SEND) , C Salisbury (SLT & School Nurse team)

Apologies P Thompson , Lesley Brown, Emma Walsh, Helen Connolly, Helen McCann

AGENDA

Introductions
Points arising from previous CHSWG meeting back in March – (minutes attached)
1. Lancashire Education
2. Specialist Speech & Language Therapy
3. Radio Aids (update from Blackpool)
4. Post 16 (i) outstanding point

Terms of Reference of the CHSWG (bringing it up to date as more workable and fluid document)
Introduction by Cathy Salisbury as to the Specialist Speech & Language

Agenda items from Sign Hi Say Hi! (SHSH)

1. How are the needs of families with deaf children and YP going to be repre-sented within Fylde & Wyre i.e. Lancashire? Would need a permanent ‘Strategic planning’ agenda

2. Families and British Sign Language (BSL) – Blackpool Fylde & Wyre (BFW) strategy for addressing needs of families to learn BSL? – CHSWG?

3. Best Practice Early Intervention Consensus document (attached).

4. Nurseries /childminders: deaf aware/BSL etc? What is the provision within BFW? How do parents access current information?

5. NHS Standards re translation and interpreting within Health – how will this be disseminated across the area?

6. CHSWG leaflet? / guest speakers for CHSWG

A.O.B: – Up to date Email addresses with names and responsibilities (Bfwhospi-tals.nhs.uk- obsolete now its (nhs.net now)

.

1. Introductions
J Thomas welcomed everyone to her first meeting as Chair and the relaunch of CHSWG.

Lancashire Education

Key Points – Lancashire education, there was no representative as unfortunately Helen Connolly was unable to make the meeting. J Russell asked how are the Education & Social Care needs of families with deaf children and young people in Fylde & Wyre going to be represented in Lancashire.

Actions Arising  – AP1 – 8/10/18. J Thomas agreed to write to H Connolly the Lancashire Education representative.

Specialist Speech & Language Therapy

Key Points C Salisbury provided the meeting with an update on the SLT provision in Blackpool Fylde and Wyre. Both Clinical Commissioning Groups had agreed to procure a service from the Cochlear Implant(CI) Centre in Manchester with the ultimate aim to train staff locally. Appointments were currently being scheduled for 12 months, with the next ses-sion to take place in December, 5 children have currently been identified to receive SLT. D McLeod asked if families could be provided with advance notice when the December session is planned as families had work commitments. The meeting felt that this was a positive step forward but that there were other options for specialist SLT within the re-gion which could cater better for children who did not have cochlear implants, particularly as a couple of the children identified were hearing aid users.
H Badje agreed to provide guidance on Specialist SLT provision to C Salisbury. J Rus-sell suggested that CCG should consider the North West Network based in Alderhey (although they offer outreach) to provide this service as opposed to only the CI Centre. Sheena Round from this group has been working with NDCS in developing this area and it was felt that a referral pathway needs to be put in place.. DM suggested that CHSWG provide some guidance/outline pathway to support the CCG and it was agreed that the next CHSWG meeting could be a workshop to draft a specialist SLT referral pathway.
It was agreed that Sheena Round be invited do a presentation to the next CHSWG on 7th February 2019. Local speech and language staff along with Lise Henderson from CI Manchester and Commissioners be invited to the next meeting.

Actions Arising A/P2 – 8/10/18 J Thomas to invite Lise Henderson and Sheena Round
A/P3 – 8/10/18 C Salisbury to invite local SLT staff
Post meeting note: An action to outline a workshop needs to be taken

Radio Aids
Key Points –  H Badje stated it was beneficial for children to have access to radio aids at home as well as school. A Crawforth stated that Blackpool were currently reviewing all Early Years equipment and its usage, the consensus of the meeting was that children should have them at all times. J Russell asked A Crawforth to feed this requirement formally in to the review group.
H Badje confirmed that 94 MPs had attended an event in July where this subject was discussed and supported. Cheshire West has taken this issue to Joint Commissioning across Health & Education and she is happy to input if needed.

Actions Arising A Crawforth to update the next CHSWG on the outcome of the review

Post 16 Transition
Key Points A gap identified through secondary education. Hazel Badjie advised that a post 14 model pathway is a priority strategy for NDCS
M Simey stated that Audiology were looking at Transition post 16 and that paediatric to adult was better.

Actions Arising None

Audiology
Key Points M Simey stated that Audiology are currently doing a lot of work with IQIPS (Standards) Post meeting Note – see https://www.ukas.com/download/brochures/NDCS%20Lessons%20for%20Accredited%20Paediatric%20Audiology%20Services%20Report%20November%202015.pdf

M Simey said that new Phonak aids will be phased in from the New Year as Sky Q will be obsolete. There is the possibility that the service will transfer to using Oticon hear-ing aids as they are a lot smaller although they need to be reviewed to ensure the quali-ty and amplification is good. J Russell asked how would radio aids work with new aids. M Simey stated that the equipment worked with all radio aids.
S McGlynn is doing a lot of work on transition process.
Dr Ahmed has produced a paper on Auditory processing work which has been well received.
Waiting lists in Blackpool are still large because space for Audiology appointments is limited at Whitegate Drive. J Wilson asked if Blackpool families could use St Annes, M Simey stated this was an alternative if families could travel to St Annes.

Actions Arising None

New Born Screening
Key Points No updates provided due to CHSWG meeting time restraints
Actions Arising None

Teachers of the Deaf
Key Points No updates provided due to CHSWG meeting time restraints

Actions Arising None

Any Other Business
Key Points J Thomas asked how A Crawforth compiled the CHSWG Annual Report. A Crawforth stated there had been no Annual Report in last 12months. It was agreed that the main topics for this report would be agreed at a future CHSWG with input from all repre-sentatives.

D McLeod agreed to update CHSWG Terms of Reference document to be issued with meeting minutes.

J Russell asked how new NHS Guidance for Commissioners:Interpreting and Transla-tion Services in Primary Care and the NHS Accessible Information Standard will be disseminated across Blackpool, Fylde & Wyre. It was agreed to attach with CHSWG minutes. See links below:

https://www.england.nhs.uk/publication/guidance-for-commissioners-interpreting-and-translation-services-in-primary-care/

https://www.england.nhs.uk/ourwork/accessibleinfo/

Actions Arising None

Date of Next Meeting – 7th February 2019 – 1.30pm at Bickerstaff